Fondazione Telethon is a leading Italian biomedical charity dedicated to advancing research on rare genetic diseases. Its mission is to turn excellent science into real therapies, improving the lives of patients and their families. We are looking for an IT & Data Project Manager who owns the operating model through which Fondazione Telethon's data and technology investments are decided, delivered and governed. Works in functional partnership with Data Strategist, DPO, area Data Owners. Decision model: the role prepares and issues assessments and recommendations; key decisions — investment prioritisation, roadmap, governance framework, vendor selection — are validated jointly with the Head of IT and the Data Strategist. Act as a strategic and operational partner to the business, taking end-to-end ownership of the Foundation's technology ecosystem. We are looking for a trusted, engaged, and accountable IT partner who understands business needs, guides technology decisions, effectively leads and challenges external providers, and continuously helps the organization strike the right balance between performance, innovation, sustainability, and the protection of the Foundation's interests. KEY RESPONSABILITIES: Demand governance
• Assesses new ICT or data service requests and issues a formal opinion.
• Runs the intake process through which business areas submit needs, translating them into requirements, build-or-buy options and implementation plans.
• Prepares business cases and expected-agevolazioni assessments to support investment prioritisation.
• Maintains the roadmap of ICT and data initiatives.



Data governance
• Enable the data governance framework among the business areas: roles (Data Owner, Steward, Custodian), decision rights and escalation paths.
• Owns the data catalogue and shared business glossary: critical data elements defined once, owned and documented. Programme delivery
• Acts as Project Manager for cross-functional ICT and data initiatives: scope, plan, budget, vendors, acceptance and go-live.
• Manages the portfolio — dependencies, risks, budget and timelines — reporting to the Head of IT and leadership.

REQUIREMENTS:
• 5–8 years in IT project or programme management, with direct accountability for budget, vendors and enterprise system delivery.
• Demonstrable data governance or data management experience — catalogue, quality, ownership models, master data — in an operational rather than advisory capacity.
• Ability to translate business needs into specifications and procurement documents.
• Working knowledge of GDPR as applied to special categories of personal data.
• Track record of securing commitment from functions over which the role holds no hierarchical authority.
• Applies predictive (PMBOK), agile or hybrid delivery methods according to project context, ensuring consistent planning and control across the portfolio.
• Fluent Italian and English Soft Skills
• Leadership
• Time Management
• Decision Making
• Communication skills OTHER INFORMATION
• Based in Milan
• Hybrid work
• CCNL Commercio
• Salary Range: 50.000
- 60.000€

📌 Program Manager (Milano)
🏢 Fondazione Telethon
📍 Milano